SONG-Tx initiative: Médecins, soignants, patients => Participez !

#CJNeph

Le Dr Bénédicte Sautenet, qui travaille actuellement dans l’équipe du Pr Jonathan Craig à Sydney, est en charge de l’identification de critères de jugement utilisables dans les essais thérapeutiques en Transplantation rénale. Pour ce faire, elle doit avoir le maximum de retours de médecins, cadres de santé, IDE et patients du monde entier qui donneront leur avis sur les meilleurs critères à retenir: il s’agit donc de répondre à cette enquête très courte (10 minutes); plus il y aura de Français, plus notre sensibilité, manière de voir les choses sera représentée.

Merci pour son enquête, et merci pour les patients.
 

The Standardised Outcomes in Nephrology – Transplantation (SONG-Tx) initiative aims to establish a set of core outcomes for clinical trials in kidney transplantation. The focus is on outcomes for kidney transplant recipients. The core outcomes will be developed based on the shared priorities of patients, family members, health professionals, researchers, policy makers, and industry

Establishing a core outcome set to be consistently measured and reported in trials in kidney transplantation will improve the integrity, transparency, usability and contribution of research relevant to people with a kidney transplant; and ensure that important outcomes are consistently reported across trials.

You are invited to join the international Delphi panel. You will be asked to provide your expert opinion on the importance of different outcomes in kidney transplantation.

The Delphi will include three short (5 to 10 minutes) surveys about three weeks apart during March to June 2016. In round 2 and 3, you will see your response and the results of the group. Your responses will be anonymous. Completion of all three rounds will ensure the reliability of the results. All panel members who complete the survey will receive a copy of the results.

To register, please fill in the form athttp://songinitiative.org/index.php/songtxdelphiregistration/ Registration will close 31st March 2016.